June 29 1992 - February 16 2009

Welcome to the Journey of a Butterfly

Welcome to Ashleys Journey,

We invite you to follow along one family's journey through grief and loss, one brave young girl's journey through faith and inspiration, this is not a blog to convert anyone , nor is it a blog about fundraising , it is what i hope will reach another family on a similar journey, we are not experts , i could not give you a magic remedy for how one gets through disease and devestation but it is our story , sometimes gut wrenching other time heartwarming and all of the time, i guarantee, very real. We are not perfect, we struggle daily and i think that the more we connect to one another the more we understand what this journey through life is all about . Sometimes that path is bumpy and we fall down, sometimes we sit and stop a while,or take a step back and other times we pound our fists on the pavement like a lunatic , still other times we find ourselves picking eachother up dusting eachother off and walking alongside them even if only for short time. This blog is dedicated to Ashley , her sisters and every single angel that picked us up along this road.
This is an introduction to the beginning and middle part of our journey the specific blogs are more indepth , the end...well there will never be an end to this journey i've come to realize that , not on this earth, for now we just assimilate it into our life like a hole , a missing limb, a continous ache that you just learn to live with.
When Ashley was about 12 years old she asked if she could go to youth group at a local church , i didn't have any church upbringing but know i craved it throughout my life , this was a rare opportunity and i recognized that if i didn't embrace it now she may lose her interst in it very quickly and beocme a jaded, cynical, stubborn person like her mom. My husband grew up in a very religious (shove it down your throat) kinda religion( i wont mention any names)or maybe it was the way he was raised ? Anyways i encouraged her to go because the community we had moved to embraced this kinda thing so i thought why not? Naturally and shortly after she started attending she was soon encouraging us to go , she had made quite a leadership name for herself there , pionner leader , sunday school helper etc, i was comfortable for the first time in my life going to a church, maybe it was the first word that greeted you as you walked in..."belong" maybe it was because they embraced community and outreach service in our city , dont know, but soon found it very therapeutic, cheaper than a shrink, and our other 3 girls jumped on board pretty quickly, my husband well... a work in progress , he communes with God in a fishing boat he says , although makes many efforts to go even if just for good way to start the week, i was still cynical , felt i wasnt holy enough but went anyways.
Ashley was scheduled to sing a solo in the church choir Dec 16 2007 , i was scared for her, i was sure she got her singing skills from me which was nil at best. She sang beautifully and you couldnt tell she had been complaining of cramps , something i chalked up to girls stuff/growing pains for a couple weeks off and on, she was an active healthy girl. When the performnce was done we got our christmas tree and i took her to the clinic to have it checked out before Christmas , they sent us to our local hosptial for tests , i was worried it was appendix. Darcy, my husband left the hosptial to go pick up our other 3 girls from friends houses , i caught the doctor in the ahallways and asked if the ulstrasound pictures were back, i remember having eye contact with Ashley only feet away from me but far enough away for her not to hear the doctor to so impassionaltely say "its not appendix, it looks like cancer", i have to stop as i write this because it is still one of the 2 biggest shocks in my entire life, i think i ran down the hallways screaming with no sound coming from my throat and not knowing where i was running . I phoned Darcy and words didnt come out of my mouth. Before I knew it we were at out local Childrens Hospital(100km away) meeting oncologiosts , being give an "oncology team" which consisted of a primary nurse, a social worker, a main oncologist and a shrink....wait a minute ...what is an oncologist? yep, a cancer doctor, this was the real thing . we waited 4 days to find out what type we were dealing with ... it was curable 90 % even though she was stage 4 , how the hell can my kid have stage 4 cancer and only a few cramps , it was mind bending. We were thrown stright into a world so foriegn to us , everything stopped ..jobs ..PAC meetings ,carppoling and yes even some friends who"couldn't handle it" it was no longer our own beds , our own home, our own anything. Treatments and life became unbearable , the 90% cure rate was not looking good at any stage throughout our journey , it seemd to be always full of negative news to the point where i couldnt stand the face of her oncologist , it nearly made me want to vomit everytime i saw him...The words they briefed us on as we began this mind altering path was " one of you will grieve through this process and no matter the out come the other will grieve after " they couldn't have been more right.......Ashley insisted on going to church on Christmas eve, two nights before she was to start chemo at the end of the service our pastor came to pray with us , i didn't know many people in the church , but wow did they know Ashley, when we rose our heads from bowing in prayer the whole congregation was surrounding us , i knew at that moment who i was going to need to get me through this ...would he be willing to listen to me...

Monday, June 7, 2010

Ashleys Music..June 2009

Ashleys music
Tuesday, June 23, 2009 at 9:05am | Edit Note | Delete
Ok , ive had alot of requests for the playlist for Ashleys music at the service . It has taken me awhile to be able to sit down and go through the music ...but here it is..i must say that this compilation had much thought and symbolism put into it by a variety of those who knew her best as well as her favourites too. The list could have gone on and on but this is some of what was important for all of us to remember such an awesome person. Ashley had a very eclectic taste in music...some of it very childlike and some of it quite sophisticated..she wasnt a huge trend follower(surprise surprise ..not!) or crap music listener...she chose music that reflected her life and mood , so for every song listed there are choruses/verses that are absoutely haunting at times. As i mentioned there are some definite obvious songs and others are ways we indiviually remembered her as immediate family ..extended family (her aunts, cousins, grands..etc) and friends... i hope you enjoyed the music and hope you think of her when a song strikes a chord with you..please comment below or privately if a song resonates with you.Thank you to her uncle JAson for recording..Mr Mcconchie and the yale concert band(ashleys band) for scoring the "in another time" ..for tracking down ashleys solo flute piece ..and for the concert and song dedication at last years concert dedicated piece (" in another time" ) which brought instant tears to my eyes... thank you to cascade church worship team for their live performance of .......thank you to my sisters for helping compile the music..here it is


Procession: "ONLY TIME" by Enya
"who can say where the road goes when the day flows....
coincidence ..my spiritual counelllor heard this song while flowing down the river in the mayan the morning ashley passed as she said a prayer for us...she wasnt back in time for her service ..had no idea we played the song as the procession..werid huh..This was also a song she would liten to to relax when getting procedures done.

1."CiIRCLE OF LIFE" by Elton John during the service...Ashley loived this song loved all disney songs had many of them on her ipod and it was her fave movie ...fitting

2.AVA MARIA by Josh Grolin ..bendiction
Ashley loved classics

3."IN ANOTHER TIME" Yale concert band /ashleys flute solo..end of service..


Back ground music
IN ANOTHER TIME..Vocals..line in teh song "I remember your smile"
PACHABLES "CANNNON" ..Ashley loved to relax to music played this on the piano at the hospital
"HAKUNA MITATA"..Disney .."Means no worries for the rest of your days"( knowing thats true for her now)
"FOREVER YOUNG" Rod Stewart...words she lived by
"I WILL REMEMBER YOU' Sarah mcLachlan...self explanatory
"ITS ONLY LIFE' Kate Voelege..sisters choice...line... "i'll be your steeping stone , youre not alone , don't loose your faith dont run away...."
"I HOPE YOU DANCE' Leeann Womack....mother/daughter advice she lived by
"HOME' MIchael Buble special signiificance because she always wanted to "go home" from hospital , she got to meet mIchael Buble ..well actaully i forced her to and there is a funny story behind that with her firend Baylee
IN THE ARMS OF AN ANGEL' Sarah Mclachlan..she was in the the arms of an angel ..sure of that..dreamt it
OH SWEET PEA...not sure the artist..when she was a baby her dad dedicated a song on the radio to her and this was the song they played ..it became a song and name we sang to her.
YOU GOTTA FRIEND IN ME.. TOY STORY/DISNEY this one was for all her good friends ..she was a good loyal friend ive been told
BEAUTIFUL DAY..U2.... seems like a strange song to have at a service but the words i liked..was all the things she may see now and as sad aas the day was we tried to make it a beautiful day for her
YOU ARE MY SUNSHINE..long version Anne Murray..well the hardest song of all used to sing it to her ..but was also for her sisters

Cascade Worship Team : Jason , Wendy(her nurse) and Rachel
Songs : Power of Your Love
: There is A Redeemer
: The River.

Thanks Everyone!

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