June 29 1992 - February 16 2009

Welcome to the Journey of a Butterfly

Welcome to Ashleys Journey,

We invite you to follow along one family's journey through grief and loss, one brave young girl's journey through faith and inspiration, this is not a blog to convert anyone , nor is it a blog about fundraising , it is what i hope will reach another family on a similar journey, we are not experts , i could not give you a magic remedy for how one gets through disease and devestation but it is our story , sometimes gut wrenching other time heartwarming and all of the time, i guarantee, very real. We are not perfect, we struggle daily and i think that the more we connect to one another the more we understand what this journey through life is all about . Sometimes that path is bumpy and we fall down, sometimes we sit and stop a while,or take a step back and other times we pound our fists on the pavement like a lunatic , still other times we find ourselves picking eachother up dusting eachother off and walking alongside them even if only for short time. This blog is dedicated to Ashley , her sisters and every single angel that picked us up along this road.
This is an introduction to the beginning and middle part of our journey the specific blogs are more indepth , the end...well there will never be an end to this journey i've come to realize that , not on this earth, for now we just assimilate it into our life like a hole , a missing limb, a continous ache that you just learn to live with.
When Ashley was about 12 years old she asked if she could go to youth group at a local church , i didn't have any church upbringing but know i craved it throughout my life , this was a rare opportunity and i recognized that if i didn't embrace it now she may lose her interst in it very quickly and beocme a jaded, cynical, stubborn person like her mom. My husband grew up in a very religious (shove it down your throat) kinda religion( i wont mention any names)or maybe it was the way he was raised ? Anyways i encouraged her to go because the community we had moved to embraced this kinda thing so i thought why not? Naturally and shortly after she started attending she was soon encouraging us to go , she had made quite a leadership name for herself there , pionner leader , sunday school helper etc, i was comfortable for the first time in my life going to a church, maybe it was the first word that greeted you as you walked in..."belong" maybe it was because they embraced community and outreach service in our city , dont know, but soon found it very therapeutic, cheaper than a shrink, and our other 3 girls jumped on board pretty quickly, my husband well... a work in progress , he communes with God in a fishing boat he says , although makes many efforts to go even if just for good way to start the week, i was still cynical , felt i wasnt holy enough but went anyways.
Ashley was scheduled to sing a solo in the church choir Dec 16 2007 , i was scared for her, i was sure she got her singing skills from me which was nil at best. She sang beautifully and you couldnt tell she had been complaining of cramps , something i chalked up to girls stuff/growing pains for a couple weeks off and on, she was an active healthy girl. When the performnce was done we got our christmas tree and i took her to the clinic to have it checked out before Christmas , they sent us to our local hosptial for tests , i was worried it was appendix. Darcy, my husband left the hosptial to go pick up our other 3 girls from friends houses , i caught the doctor in the ahallways and asked if the ulstrasound pictures were back, i remember having eye contact with Ashley only feet away from me but far enough away for her not to hear the doctor to so impassionaltely say "its not appendix, it looks like cancer", i have to stop as i write this because it is still one of the 2 biggest shocks in my entire life, i think i ran down the hallways screaming with no sound coming from my throat and not knowing where i was running . I phoned Darcy and words didnt come out of my mouth. Before I knew it we were at out local Childrens Hospital(100km away) meeting oncologiosts , being give an "oncology team" which consisted of a primary nurse, a social worker, a main oncologist and a shrink....wait a minute ...what is an oncologist? yep, a cancer doctor, this was the real thing . we waited 4 days to find out what type we were dealing with ... it was curable 90 % even though she was stage 4 , how the hell can my kid have stage 4 cancer and only a few cramps , it was mind bending. We were thrown stright into a world so foriegn to us , everything stopped ..jobs ..PAC meetings ,carppoling and yes even some friends who"couldn't handle it" it was no longer our own beds , our own home, our own anything. Treatments and life became unbearable , the 90% cure rate was not looking good at any stage throughout our journey , it seemd to be always full of negative news to the point where i couldnt stand the face of her oncologist , it nearly made me want to vomit everytime i saw him...The words they briefed us on as we began this mind altering path was " one of you will grieve through this process and no matter the out come the other will grieve after " they couldn't have been more right.......Ashley insisted on going to church on Christmas eve, two nights before she was to start chemo at the end of the service our pastor came to pray with us , i didn't know many people in the church , but wow did they know Ashley, when we rose our heads from bowing in prayer the whole congregation was surrounding us , i knew at that moment who i was going to need to get me through this ...would he be willing to listen to me...

Monday, May 17, 2010


SOPHY
Saturday, June 14, 2008 at 12:54pm | Edit Note | Delete
If you know Ashley than surely you know Sophy. Sophy entered our family on June 28 1999(the night before Ashleys 7th birthday) Sophy is a yorkshire Laso cross. The day sophy and Ashley met they became kindered spirits, vitulaly inseparable, best buds. I am sure that Sophy could easily be considered Ashleys favouirte sister- that is not to say she would trade in one of her sisters for sophy- but lets not put that to the test. I have seen Ashleys mood completely turn around just by the simple embrace of her beloved dog, when Ashley is down Sophy is her mood booster , when ashley is up Sophy is her bigggest playmate. If another dog happens to be in Ashleys presence... look out ...Sophy is on guard. Sophy is all of 15 lbs and scrawny would be a generous term, you'd think she had rotweiller in her the way she barks if anyone enter our domaine and address Princess Ashley without written consent.
No surprise last week when Ashley notifies me that Sophy has a lump on her abdomen. After a consulatation with the vet, it is determined that Sophy has a tumor. Unbelievable..ive heard of sympathy pains before but this is ridiculous.
Ashley of course was scared and worried, . I felt a strange sense of familiarity outside myself as Ahsley asked the vet despearte questions like "she's going to be ok isn't she? " Does she have cancer?" "when wil she be ok?" "what can i do?" I know if she could she would have stayed in the o.r. room with her , she went to check on sophy after school and came out of the recovery room looking like a worried mom , she looked at me and i wondered for a moment "does she forgive me for my crazy staate of panic and deperation now?" "Does she understand a mothers heart now" When we were able to pick up sophy to bring home i saw this self- scarificing child who battling cancer herslf was able to put her stuff aside and nurture her dog, her friend, back to health. Sophy recovered nicely and my hope was that Ahsley would come through her very similar surgery as unscathed as Sophy.
Ashley had her surgery 9 days later, it was successful as far as the safety part of the operation, now we just sit and wait for the results of the biopsy and pray for miracles. In the meantime, Ashley, although in pain, is recovering nicley with attiude and can't wait to get home to Sophy.

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