10 years
It’s bleak outside today , especially bleak because i’m looking out at the ocean and the ferry is particularly crowded , i’m boxed in listening to some 30 somethings having a pissing contest on who has the best-est newest greatest thing, gadget, kitchen , kids etc. i’m feeling a bit trapped and my only option seems to be to stand out on the deck and just soak up the rain , enjoy the solitude yet i know i would just cry to myself and wonder how it is possible that 10 years ago i was in an ambulance heading for Children hospital bewildered and gobsmacked at how i could possibly be here only half knowing what our fate held (diagnosis confirmation day) . I may have been like one of those 30 somethings ( ok 40 somethings ) 10 years ago , how i would have disliked her now, how vanilla my life was, how surface and pleasantnville i could have been and how i would have chosen to stay “her” i guess... not saying i’m any better of a person , i’m just a bit more of a contradiction then i was before , i just have more information now , i know the truly yucky parts of myself , my faith , my marriage, a marriage and a faith that has been tested to the brink and while it doesn't follow recognizable paths anymore it is a newly carved , newly defined marking of a trail. We dance a new dance now and are learning not to step on each others feet , we’re getting there ... this world is a tough place to be for so many , i wonder if it’s been tough in some way for these 30 something next to me , maybe they’re really good at puttin on a facade , maybe it’s gonna sneak up on them one rainy normal December day. Life is a head shaker , you wonder how some people go through so much S#$% and others, no better , no worse, seem to skate by. It’s cruel out there lately , a child that lived through war-torn Syria fleas to a safe country and gets hit by a bus in first world country , wth? an officer murdered over a stolen car , children fighting cancer for the 2nd 3rd forth time and some don’t make it at all. C’mon tell me where the playing field is even . I know now that sunshine and rain come from the same sky and it all depends where on earth you happen to be walking .
Grief is a member of our family, it has to have a place, it gives us something to take care of , it’s a suitcase we carry around with us , one of those well worn suitcases from along ago , with stickers on it that tell the world where you’ve been , I’m not a world traveler but some days it feels like my suitcase has been all over the world and back , sometimes the thing pops open and everything comes spilling out , it can be uncomfortable and embarrassing and i have to gather up the belongings very quickly and stuff em back inside , it is hard work , it’s not like a hard job or a hard course it’s like physically carrying heaviness with you every where you go and at the end of the night you can only just lie it bedside for a few hours , wake up the next morning , thank God for another day and pick it back up and peek inside of it once in awhile just so you can touch the fragile things inside again. Some years go by and maybe you can remove a few things , lighten it up a bit , but never too much , you hate it and want it at the same time
10 Years later and lives have changed , it’s all i can say , that its’ “changed” some things are harder . some things are just clearer . People have come and gone from our lives and that’s ok , i have a few more phobias, quirks , wrinkles and cortizol and worry free parenting has never been restored ( just ask my kids) I have way more patience in some areas and wayyyy less in others. I teeter between being stoic and bawling my eyes out from moment to moment (k, maybe that’s hormones) This is not your typical sunny Christmas form letter , we are not full circle , i’m not sure that exists in this ,but i pray our kids are settled , confident beings and continue to be a little more aware of the world around them , ( judging by their career paths i think they are) that our marriage continues to know it can withstand the fire and that faith remains the foundation in it all ...and if that’s all i was able to accomplish in 10 years then that is enough.
Much peace ...10 years post dx
Lori