June 29 1992 - February 16 2009

Welcome to the Journey of a Butterfly

Welcome to Ashleys Journey,

We invite you to follow along one family's journey through grief and loss, one brave young girl's journey through faith and inspiration, this is not a blog to convert anyone , nor is it a blog about fundraising , it is what i hope will reach another family on a similar journey, we are not experts , i could not give you a magic remedy for how one gets through disease and devestation but it is our story , sometimes gut wrenching other time heartwarming and all of the time, i guarantee, very real. We are not perfect, we struggle daily and i think that the more we connect to one another the more we understand what this journey through life is all about . Sometimes that path is bumpy and we fall down, sometimes we sit and stop a while,or take a step back and other times we pound our fists on the pavement like a lunatic , still other times we find ourselves picking eachother up dusting eachother off and walking alongside them even if only for short time. This blog is dedicated to Ashley , her sisters and every single angel that picked us up along this road.
This is an introduction to the beginning and middle part of our journey the specific blogs are more indepth , the end...well there will never be an end to this journey i've come to realize that , not on this earth, for now we just assimilate it into our life like a hole , a missing limb, a continous ache that you just learn to live with.
When Ashley was about 12 years old she asked if she could go to youth group at a local church , i didn't have any church upbringing but know i craved it throughout my life , this was a rare opportunity and i recognized that if i didn't embrace it now she may lose her interst in it very quickly and beocme a jaded, cynical, stubborn person like her mom. My husband grew up in a very religious (shove it down your throat) kinda religion( i wont mention any names)or maybe it was the way he was raised ? Anyways i encouraged her to go because the community we had moved to embraced this kinda thing so i thought why not? Naturally and shortly after she started attending she was soon encouraging us to go , she had made quite a leadership name for herself there , pionner leader , sunday school helper etc, i was comfortable for the first time in my life going to a church, maybe it was the first word that greeted you as you walked in..."belong" maybe it was because they embraced community and outreach service in our city , dont know, but soon found it very therapeutic, cheaper than a shrink, and our other 3 girls jumped on board pretty quickly, my husband well... a work in progress , he communes with God in a fishing boat he says , although makes many efforts to go even if just for good way to start the week, i was still cynical , felt i wasnt holy enough but went anyways.
Ashley was scheduled to sing a solo in the church choir Dec 16 2007 , i was scared for her, i was sure she got her singing skills from me which was nil at best. She sang beautifully and you couldnt tell she had been complaining of cramps , something i chalked up to girls stuff/growing pains for a couple weeks off and on, she was an active healthy girl. When the performnce was done we got our christmas tree and i took her to the clinic to have it checked out before Christmas , they sent us to our local hosptial for tests , i was worried it was appendix. Darcy, my husband left the hosptial to go pick up our other 3 girls from friends houses , i caught the doctor in the ahallways and asked if the ulstrasound pictures were back, i remember having eye contact with Ashley only feet away from me but far enough away for her not to hear the doctor to so impassionaltely say "its not appendix, it looks like cancer", i have to stop as i write this because it is still one of the 2 biggest shocks in my entire life, i think i ran down the hallways screaming with no sound coming from my throat and not knowing where i was running . I phoned Darcy and words didnt come out of my mouth. Before I knew it we were at out local Childrens Hospital(100km away) meeting oncologiosts , being give an "oncology team" which consisted of a primary nurse, a social worker, a main oncologist and a shrink....wait a minute ...what is an oncologist? yep, a cancer doctor, this was the real thing . we waited 4 days to find out what type we were dealing with ... it was curable 90 % even though she was stage 4 , how the hell can my kid have stage 4 cancer and only a few cramps , it was mind bending. We were thrown stright into a world so foriegn to us , everything stopped ..jobs ..PAC meetings ,carppoling and yes even some friends who"couldn't handle it" it was no longer our own beds , our own home, our own anything. Treatments and life became unbearable , the 90% cure rate was not looking good at any stage throughout our journey , it seemd to be always full of negative news to the point where i couldnt stand the face of her oncologist , it nearly made me want to vomit everytime i saw him...The words they briefed us on as we began this mind altering path was " one of you will grieve through this process and no matter the out come the other will grieve after " they couldn't have been more right.......Ashley insisted on going to church on Christmas eve, two nights before she was to start chemo at the end of the service our pastor came to pray with us , i didn't know many people in the church , but wow did they know Ashley, when we rose our heads from bowing in prayer the whole congregation was surrounding us , i knew at that moment who i was going to need to get me through this ...would he be willing to listen to me...

Thursday, December 1, 2016

Living Vicariously

Several years ago i attended a job workshop entitled “Vicarious Trauma” i suppose the title is self explanatory but basically it was discussing self-care in the helping field, often times when dealing with someone else’s trauma in can adversly effect the “helper”. I can’t remember the antidote or recommendation or self care techniques they encouraged (sometimes i tend to drift off during workshops) i imagine it was a long walk on the beach or a bubble bath etc bla bla bla. I always thought the title seemed a bit”woe is me “ considering someone else is living the trauma and here we are concerned about how it will effect “me” peripherally.

I speak of this now as the Christmas season is upon most of us and the world around us lately just seems off kilter .I am speaking vicariously ... I did not have to vote in the US election and though it will effect Canadians to some degree i’m glad i am not an American in these days, my child did not attend Abby Senior nor does she know any of the victims, we are no longer in the childhood cancer hospital routine , i have not been effected by Fetanyl tragedies , i am not inflicted with daily pain , i am not ( as far as i know ) getting divorced . Why do i mention these things ? Because if you aren’t dealing with the really really hard stuff and your life is status quo , maybe a few of life’s everyday situations then really you’ve got it all. I am not trying to sound like one of those annoying facebook meme’s that has life all tied up with a bow in a sentence or two.

The world is hurting ,the world is on fire and much of the news from across the world (and home) is so hard to grasp and has become so “everyday’ that we become more effected by an SPCA commercial then we are about children being blown up in Aleppo. Typically this time of year does a real number on me , we are approaching the anniversary of diagnosis day and that our lives will never truly be the same but what i have learned especially about this time of year is that it can be a very difficult time for many , Christmas will not be merry , Christmas will not be status quo , it will be a new normal for many, it will be reinventing the wheel , wanting to hide, feeling left out ...it is important to give financially this time of the year where you can , many of the charities depend on the giving spirit to sustain them throughout the year but just as importantly is recognizing that if this is a status quo year for you , then be over the moon with the normalness because next year or the year after things may look very different .

Be mindful of the the people you have on Facebook as you post your Merry Christmas plans etc. Be gentle with those whose plans/life have been turned upside down , don’t get bogged down by the absolute waste of time , money and energy “things” There are still days i wish i could close my eyes and wake up in the New Year. Every morning when i turn on the computer my first few updates are from a site of bereaved parents of Childhood Cancer, many of the entries are new inductees , raw , broken , hopeless, frustrated with people who ( i assume) are trying to find the right words to say to them and often times say hurtful things ...God DID NOT need another angel !!!! God is not punishing you , things Do NOT happen for a fricken reason ( well not in the existential way , like obviously if you drive 100mph towards a brick wall then yea you’re gonna die ...so yeah the reason you died is cause you drove 100 mph into a brick wall , duh ..) but no ,not a divine intervention reason , ugh!

So be with the broken , do not expect anything from them, be mindful of them , get them through , be practical and don’t forget them 2 weeks after their tragedy , it is often weeks down the line when the pain truly sets in, try not to walk away saying “thank God it’s not me “and return to your “merry little Christmas” ( sorry that sounded kinda catty) There will be people this year in the stores and malls who will have to leave the store because hearing “ i’ll have a blue Christmas without you” will send them running for the exit doors , be mindful of your Christmas cards , include their loved ones name in some form , Christmas may still have to go on for them but offer to Christmas shop for them , bring them a meal , bring them wine , cry with them , like ugly cry with them . bring them a soft blanket , soup , don’t ask them why they don’t have a tree, give them a hand massage ( do not underestimate this , it is therapeutic) take care of their children , take them on an outting ( for more ideas just message me ) If you say your sending prayers then get down on your knees and pray for them , i mean right down , crickity ole knees and all and pray something meaningful, peace , comfort , wisdom. Speak their loved ones name , help them to honor their loved one in a meaningful way ( message me for more ideas on this ).

Our lives will never be “normal “ again and often when i had heard others who have gone through similar say “it gets easier” i thought to myself well maybe for you but i don’t think it’s gonna be that way for me ( i guess like somehow i loved my child more than they loved theirs, i don’t know ) There is a sense of some routine restored or reinvented i guess, we don’t have it all figured out but somehow time and space do provide a sense of a scab over the wound.

Life is not always a Currier and Ives greeting card. So yes live a bit vicariously through or with someone else this year and may you truly appreciate the absolute bliss of normalness .
Peace
p.s i just looked up the word normalness , it’s not really a word but i think it should be

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