June 29 1992 - February 16 2009

Welcome to the Journey of a Butterfly

Welcome to Ashleys Journey,

We invite you to follow along one family's journey through grief and loss, one brave young girl's journey through faith and inspiration, this is not a blog to convert anyone , nor is it a blog about fundraising , it is what i hope will reach another family on a similar journey, we are not experts , i could not give you a magic remedy for how one gets through disease and devestation but it is our story , sometimes gut wrenching other time heartwarming and all of the time, i guarantee, very real. We are not perfect, we struggle daily and i think that the more we connect to one another the more we understand what this journey through life is all about . Sometimes that path is bumpy and we fall down, sometimes we sit and stop a while,or take a step back and other times we pound our fists on the pavement like a lunatic , still other times we find ourselves picking eachother up dusting eachother off and walking alongside them even if only for short time. This blog is dedicated to Ashley , her sisters and every single angel that picked us up along this road.
This is an introduction to the beginning and middle part of our journey the specific blogs are more indepth , the end...well there will never be an end to this journey i've come to realize that , not on this earth, for now we just assimilate it into our life like a hole , a missing limb, a continous ache that you just learn to live with.
When Ashley was about 12 years old she asked if she could go to youth group at a local church , i didn't have any church upbringing but know i craved it throughout my life , this was a rare opportunity and i recognized that if i didn't embrace it now she may lose her interst in it very quickly and beocme a jaded, cynical, stubborn person like her mom. My husband grew up in a very religious (shove it down your throat) kinda religion( i wont mention any names)or maybe it was the way he was raised ? Anyways i encouraged her to go because the community we had moved to embraced this kinda thing so i thought why not? Naturally and shortly after she started attending she was soon encouraging us to go , she had made quite a leadership name for herself there , pionner leader , sunday school helper etc, i was comfortable for the first time in my life going to a church, maybe it was the first word that greeted you as you walked in..."belong" maybe it was because they embraced community and outreach service in our city , dont know, but soon found it very therapeutic, cheaper than a shrink, and our other 3 girls jumped on board pretty quickly, my husband well... a work in progress , he communes with God in a fishing boat he says , although makes many efforts to go even if just for good way to start the week, i was still cynical , felt i wasnt holy enough but went anyways.
Ashley was scheduled to sing a solo in the church choir Dec 16 2007 , i was scared for her, i was sure she got her singing skills from me which was nil at best. She sang beautifully and you couldnt tell she had been complaining of cramps , something i chalked up to girls stuff/growing pains for a couple weeks off and on, she was an active healthy girl. When the performnce was done we got our christmas tree and i took her to the clinic to have it checked out before Christmas , they sent us to our local hosptial for tests , i was worried it was appendix. Darcy, my husband left the hosptial to go pick up our other 3 girls from friends houses , i caught the doctor in the ahallways and asked if the ulstrasound pictures were back, i remember having eye contact with Ashley only feet away from me but far enough away for her not to hear the doctor to so impassionaltely say "its not appendix, it looks like cancer", i have to stop as i write this because it is still one of the 2 biggest shocks in my entire life, i think i ran down the hallways screaming with no sound coming from my throat and not knowing where i was running . I phoned Darcy and words didnt come out of my mouth. Before I knew it we were at out local Childrens Hospital(100km away) meeting oncologiosts , being give an "oncology team" which consisted of a primary nurse, a social worker, a main oncologist and a shrink....wait a minute ...what is an oncologist? yep, a cancer doctor, this was the real thing . we waited 4 days to find out what type we were dealing with ... it was curable 90 % even though she was stage 4 , how the hell can my kid have stage 4 cancer and only a few cramps , it was mind bending. We were thrown stright into a world so foriegn to us , everything stopped ..jobs ..PAC meetings ,carppoling and yes even some friends who"couldn't handle it" it was no longer our own beds , our own home, our own anything. Treatments and life became unbearable , the 90% cure rate was not looking good at any stage throughout our journey , it seemd to be always full of negative news to the point where i couldnt stand the face of her oncologist , it nearly made me want to vomit everytime i saw him...The words they briefed us on as we began this mind altering path was " one of you will grieve through this process and no matter the out come the other will grieve after " they couldn't have been more right.......Ashley insisted on going to church on Christmas eve, two nights before she was to start chemo at the end of the service our pastor came to pray with us , i didn't know many people in the church , but wow did they know Ashley, when we rose our heads from bowing in prayer the whole congregation was surrounding us , i knew at that moment who i was going to need to get me through this ...would he be willing to listen to me...

Tuesday, December 17, 2013

Simplicity

Simplicity
Well it's that time of year again and my message is the same , perhaps it goes out to those who are unsure what to do with themselves as this month sweeps most people up in merry sense of busy-ness. There aren't too many gifts i consider valuable this time of year but one i guess i try to remember and keep close to my heart is that Christmas CAN be something different than what the world dictates to me, it can be simple , un-grand , basic, it can be for-going of the unnecessary , this isn't being scroogy it's time spent with loved ones , a fine meal and if finances happen to treat you to a bonus then sure, ....gift giving. Religiously speaking, the bible does not really dictate the exact birth of Christ but can be a time to be grateful for the birth of a Savior . I think i now happen to know more people , through similar journeys and the clients i see at work that Christmas has become a struggle for many people to get through, this is unfortunate because the bar has been set so high in western culture to provide some idealistic , magical , super hero Christmas, seems to me by watching people who serve others, somehow it takes the focus off the unnecessary... if you struggle at Christmas it's ok to set the bar lower, be gentle with yourself and don't get caught up on the things you just can't do and feel pressured to do. Having said that , i am grateful if i can just get through this holiday, this month, in peace, i thought i was nearly half way through until i got a phone call on Friday night, i happen to be bell ringing for Christmas kettles with Brittanny's Youth Group on Friday night when i got the dreaded phonecall ... "the girls have been in a car accident", after several explatives that i tried to hush ( as i mentioned i was with the church youth group ...yikes) my body went into that all familiar frozen mode, numb from the brain down. "Really God ? you see where i am right now, right? not that i ring bells to ensure my kids safety and health forever and ever but cmon , now? Once i was able to hustle my terrorized butt out of there i still had a 20 min drive home to grab Darcy and go....oh there's a treat , waking my husband and relaying this info...have you ever tried waking a bear out of hibernation to tell him winter's not really over...this poor man sleeps in startle mode most of non waking hours(battlescars) ...needless to say we were out the door and into that strange familiar December soul-cold air that i hadn't felt in several years, headed for E. Hastings and Kennsington in seconds... but what do you know there's an accident 3 cars ahead of us on the freeway. Mom of the passenger (Jen ) happen to make it to accident scene before us and decided to take the girls to the hospital and meet us there ...Once we met them at the hospital i was able to see them , bruised and battered from the airbags deploying, but alive , walking and besides a very swollen botox-looking lip on Logan, recognizable ...oh did you notice i said Logan , yes Logan the child with umpteen brain tumors ( friends from our time at BCCH) of course i was worried about Christy , her pain she would feel in the next couple days , her ego , her emotions but i just needed to hear that Logan suffered no trauma to anything above her plump lip. Triggers were misfiring in all departments of my body. Once again i found myself sitting next to a familiar friend who i really hoped that i would never have to encounter in a hospital again ...but she was cool as a cucumber , maybe all those years in oncology, this is nothing, this isn't Children's, this is some weird kind of everyday normal kid thing , not to say she wasn't concerned , just a different perspective i guess... i could use a dose of that, and no we had no oncology parent Ativan drug dealing ..(oops i meant sharing ) going on either ... Anyways we all got to leave the hospital at the same time, the cold air blasting me in the face again, this time it seemed slightly warmer... these besties sporting matching hospital bracelets ... some kinda cute memory for them ...some kinda weird torment for us. Oh and Stef poor Stef in all this . her car , Christy borrowed it and well lets just say i think we're car shopping again , minor damage but air bags went off so its probably a done deal. Well yesterday marked the 6th anniversary of diagnosis day and today the day i first encountered her oncologist at BCCH...K.S. not the easiest relationship i've ever had but it's not one that should even exist if we were in a perfect world, so ...i'll leave it at that.... bid you all a very peaceful time , may you all experience the possibility of simplicity and peace and giving and gratitude and a year of God's strength and grace for whatever lies a ahead

Monday, October 21, 2013

A lesson in letting go....

Ok , i haven't written in a few months and today provided me  with enough material to write a book. Give you some backstory  first...a few months ago Christy had made the decision to investigate missions trips , did her research and  chose OM Canada and a short missions to Chile , although very excited for her and her  decision to use her talents with  teaching young children  her dad and i were quite hesitant and a little fed up with people saying "she'll be just fine " ...."really ...do you have a crystal ball? would you have said that to me  when  Ashley was  having cramps that lead to  an ultrasound and so  on and so on , just because  something tragic has happened to one of your children does not give you a free pass on the rest of your children , the world does not work like that....Anyways, we finally came to the conclusion that she is 18  nearly 19 and will do what she chooses to do  and really this is something selfless and  in her words  God driven, it's not like she was going on a  3 week booze cruise to  Mexico...  so priorities right , convictions right? Anyways , she fundraised shared her  heartfelt testimony  managed to get the time off at a fairly new job and communicated the  paperwork etc to get this going, HOWEVER, the mom part of me  would consistently ask her questions re the trip , the  particulars , itinerary etc, answers were met by "I got this don't worry, I can do it myself" ....Folks, this is not like helping your child  prepare for her gr 7 camp or band trip this was a lesson in letting go ...yesterday ,i had noticed that she was barely packed , i asked her if she needed help , i may well have just asked her if she wanted me to go with her ..."Christy do you have appropriate shorts to wear there (its 27 deg) and not your daisy dukes for crying out loud"... "MOM i'll get some" .. (this is 24 hours  prior to trip) . Jump ahead mid afternoon, day before trip,  she starts making cupcakes  to take to her coworkers ( we're not allowed any by the way) then off to lunch with friends ...now i'm cringing , she strolls in at 4 ish with her friend,  i order her favorite dinner and suggest we all watch a movie, movie finishes around 8 and she decides she has to go get a travel convertor because ours is not the  right one..phones me an hour later to  inform me she and Stef are  going out for her friends bday dessert at Cactus Club , now i'm in panic mode. strolls in at 10 p.m. , packs a bit more , never did get her  convertor. The next morning 7:30 am (90 mins prior to leaving for airport,) she takes her time curling her hair , picking an outfit, doing her make up and getting dressed, at 8 am informs us she's gotta go drop off her  cupcakes at work then  drop a bday card off for her friend and pick up a travel convertor .."ugh all these things i/she could have done a week ago " she strolls in the door  at 8:55 ... the rest of us  have out coats on standing at the door,  with her luggage inn our hands ready to go , she heads back to the bathroom to finish winding her hair around  her curling rod and telling us to relax ."CHRISTY we have to go " ...."k well i have to  send an email from my phone to the computer and print it off first "  41 flippin pages later ( no joke) and just what is this document ???? a handbook of all the answers to questions i had been  asking for months...are you kidding??????????
Ok now were at the airport, not that i expected some hallmark moment at Air Canada departures but if you want the rundown on that  slice of heaven i'm sure you can catch it on some episode of  Candid Camera or  airport security cameras "teenage daughter blasts family "i can do it myself" it;'s alright and by the end of it we were all laughing and shaking our heads, really did you expect any less /more .
Needless to say it's been a stressful week , with the passing of my dad ( almost a year to the day of  Darcy's dad's passing ) We had intended to visit him on the Sunday so Christy could say her possible last goodbye's but  as fate has it  cancer had other  ideas ...stupid cancer full of so many evils, he passed way  2days prior. Once again i would like to thank everyone for their support and condolences and prayers not only for our loss but also for the prayers of support in letting go. It's been a few days since i started this  entry and we have spoken to Christy who seems to be in her  element , yesterday she was playing  soccer in the courtyard with children from the orphanage, nothing like living vicariously through your children ...hahaha.
Meanwhile on the homefront we are preparing for yet another driver in the house , thankfully she has purchased her own car so mine will be slightly more preserved , strange thing letting go , whether it's your  children or your parents , there has to be some sort of resolve , some sort of que sera sera moment when you let be  what will let be , make peace with it and know God is with us in all circumstances , perhaps not changing the circumstances, but walking with us through it .
p.s. Christy if you're reading this  Dad has been driving you Land Rover , Stef's wearing your clothes and Britt's sleeping in your bed...Just sayin.

Peace and Joy,
Lori

Thursday, January 17, 2013

Original written date dec 16 2012

Time and Faith and  Hope and a  Bunch of other Stuff


Time seems to be spinning at a new rate or what they say about getting older and time is really true because i can't seem to keep up , maybe i just don't want to because i don't really like the deception of time lately. Yes , i know that this time of year does a little number on my sanity , perhaps even more this year as we recently reached the 5 year mark of Ashley's diagnosis...5YEARS , what ??? As i sat around on Dec 16 feeling a bit sorry for myself i couldn't help but think of 20 new members inducted into the grieving parents club, allbeit very different circumstances...i watched the President and various clergy address the grief in Newtown and thought about the various ways evil in this world snatch our children away from us , they come in different forms i suppose . gun wielding disturbed individuals , poverty , illness, regardless they all take large numbers of children every year and it is unfortunately something i don't think is necessarily going to go away in our lifetime . I wonder how these families are going to get through this, especially this time of year which kinda brings me to my point about setting Christmas "frivolousness"  so far up on a pedestal that its a huge fall down when celebrating seems impossible for whatever reason at some point in your life, just enjoy the closeness of family , the reverence of the simple message and don't get to wrapped up in what doesn't or shouldn't belong.I was actually surprised to see how spiritual / religious  North America or maybe just this small town appeared to be, maybe they were in the middle of some bible belt , some unsuspecting sweet little place where evil normally doesn't enter, apparently evil knows no bounds ...but neither does light ...i'm glad were still looking for Good and God amongst the darkness and holding out hope for a time and place that are beyond this earthly realm as we know it now , a place where these children will walk and play and run and giggle without a care , for now their parents are left attempting to convince the siblings left behind that there's no such thing as monsters. There are monsters little ones , we can call them murderers , guns , mental illness, cancer , terrorism , whatever and we can fight against it (and we should ) remembering that it unfortunately in this world just takes on a different form , because it is evil and that's what evil does... it slaps us upside our finite minds and catches us unprepared and leaves us  craving for something, we need to be careful because evil wants us to crave more evil , light and goodness wants us to remember we have faith and hope in a something bigger and  better... we just can't see his face and can't personally have him  answer our questions  right this minute , it is a fallen world for now, the result of free will ,but a time will come when we are all reunited , no more tears , no more pain , sorrow or suffering , it is written.
Never really sure whether i'm looking forward to a new year or not , we think "this year's gotta be better than the last" but who know's, it's only a date that changes so i guess it's what you make it and besides a continuing journey in this weird road it was good mixed with bad, guess that's what they call life , who gets to live without bad ??? no one escapes i guess , some people's "bad " just has a different definition sometimes ( can be frustrating ). We lost Darcy's dad a few weeks ago so yeah some bad mixed in with the good of  Ashley's book "The Golden Butterfly " reaching  special places and people...speaking of which, the  book is now available at The House of James in Abbotsford, exciting. When i was in grade 2 we had to write this little book called "Fortunately , Unfortunately " each page would outline a "fortunately "statement negated on the next page by an "unfortunately " statement , it actually got quite annoying and minotinous ...life though, right? So here goes ...Fortunately we have 2 L drivers, so soon i won't be a taxi ..unfortunately new drivers can get the gas mixed up with the brake resulting in an uprooted tree and serious front end damage...fortunately everyone was ok . Unfortunately serious cuts to Social Service programs...Fortunately i still have "at least" a p/t job, able to pay the 2 ICBC deductibles ...yes i said 2 , i had a little incident with the courtesy car , cracked the bumper , forgot i wasn't driving my truck....lol.
Guess this is a version of staying positive, having hope , faith and knowing "this to shall pass" ....a gift of time i guess. May this gift of time be a blessing to you this year.

Lori

Peace ,
Lori

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